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*UPDATE*The Oswalds made the NEWS! See PNK Paul Revere and NATHAN on WISC TV channel 3 news

  Author:  29532  Category:(News) Created:(11/13/2008 6:08:00 PM)
This post has been Viewed (1844 times)

Yup. it finally made the news tonight at 6 pm our time on channel 3 news out of Madison. See it here





I am so proud of my husband who could not have said it any better in the interview. Shane did great. Brad was a great guy and we all had fun during the interview. There ya go, see him as well as our FAVORITE Doctor, Blaise Nemeth, the guy calls us almost every day to check up on Nathan. He called today to tell us he did the interview with Brad and had fun too. Brad is a nice guy and is just so down to earth and great. Enjoy us on the news. We got all teary eyed when we saw it. Tried to record it, but the VCR hates human life. Here's the transcript of the whole thing too.

Rock County Family Faces Rare Illness Baby Born With Shrewsbury Syndrome

POSTED: 7:46 pm CST November 13, 2008

JANESVILLE, Wis. -- A Rock County family is celebrating the arrival of a baby boy, but they are also facing a future of doctor visits, surgeries and years of questions.

Nathan Oswald was born with an extremely rare illness called Shrewsbury syndrome.

The Oswalds' oldest child doesn't have the condition, and they were hoping it was gone for good. But that hope has shifted to their youngest, who might be the key to solving a generations-old medical mystery.

"When he was born, it was a complete shock," said mother Mackenzie Oswald.

Her 3-week-old boy can’t move his elbows. Some of his bones are fused together and others haven't developed due to Shrewsbury syndrome.

"As it is now, getting him dressed, I'm afraid I'm going to break his fingers if I'm not careful enough putting his hands through the sleeves," Mackenzie Oswald said.

The Oswalds are working with doctors to find out as much about the disorder as possible. But they said finding any information has been difficult.

"When people have described this in the past, they've had their name attached to it. So different families that have different features of the disorder have had a different name put on to it, based on whoever described it or the family it was originally from," said Dr. Blaise Nemeth, of American Family Children's Hospital in Madison.

Doctors said that finding others with similar symptoms is critical in determining what causes the condition and the best way to treat it.

Nathan has numerous surgeries ahead, but there's no cure.

His father, Shane, knows much about the syndrome. He has lived with it all his life.

"Somebody looking at you different or treating you different because you don't seem to be normal like everybody else, it's definitely a challenge. But the hardest part is getting over it yourself," Shane said.

The Oswalds said they hope that, somehow, they can keep Shrewsbury syndrome from being passed to future generations.

Nathan will be the focus of medical research, with the hope of providing a more normal life.

"We're hoping that with the surgeries, we can do as much as we can for him, so he can have normal mobility and have a pretty normal life," said Mackenzie Oswald.

Doctors said Shrewsbury syndrome could be part of a broader condition known as symphalangism.

The Oswalds said they might reach out to a researcher at Case Western Reserve in Cleveland, who is studying symphalangism.

Trips and stays at out-of-town hospitals are going to be costly, and the family said it is looking for any help it can get. The family is asking for donations of clothing for Nathan, money or anything else to help.

Donations can be dropped off at Repeat Retreat at 1056 Matheson St. in Janesville.

Friends are also organizing a fundraiser, though a date and location for the event have not yet been set.

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Halloween is Right around the corner.. .







 
Replies:      
Date: 11/13/2008 6:19:00 PM  From Authorid: 18928    It's very commending what you are doing. I will pray for you all. Good luck!  
Date: 11/13/2008 6:20:00 PM  ( ChatminPNK )   Aint we all so darn cute
Date: 11/13/2008 6:22:00 PM  From Authorid: 18928    yes you all are   
Date: 11/13/2008 6:26:00 PM  From Authorid: 10657    It was a very nice piece.  
Date: 11/13/2008 6:28:00 PM  From Authorid: 33401    *HUGGGS* Love,  
Date: 11/13/2008 6:47:00 PM  From Authorid: 13138    Awesome. I pray you get all the help you need. Your son is SO precious. Have a great evening. Take care,  
Date: 11/13/2008 7:07:00 PM  ( From Author ) From Authorid: 29532    Yeah Nathan slept through ALL of it but the last 40 seconds. That part didn't even make it in the clip cause all Brad was doing then was taking pictures LMAO  
Date: 11/13/2008 7:36:00 PM  From Authorid: 15677    awe hunny it was so good hes such a dollbay i love seeing who all of you are now.  
Date: 11/13/2008 7:46:00 PM  From Authorid: 20750    Oh wow that is soooo awesome! I am so proud of you guys. He is so precious & is an angel amongst us all! Much love , thoughts, prayers to you all!  
Date: 11/13/2008 7:47:00 PM  ( From Author ) From Authorid: 29532    Thank you all! Thank you appi He is a doll baby with an irratible tummy, 3 diff formulas now, he can't have milk based, nor soy based so now he's on some uber expensive weird named one. Enfamil Nutramigen Lipil. Pronounced New TRAM i jen. (I put the pronounciation of it in here mostly for my benefit. I'll forget otherwise again) The lid bosts that it is clinically prooven to quiet colic symptoms fast, often within 48 hours.......HAHA we'll see.  
Date: 11/13/2008 8:29:00 PM  From Authorid: 63265    Wow! He's a cutie! I wish I would have seen it. I won't get local channels on satellite until a month from now, but had I known, I would have tuned in! Wishing you all the best!  
Date: 11/13/2008 8:31:00 PM  From Authorid: 21203    BTW your Doctor looks like a KID! Gosh, I'm getting old!  
Date: 11/13/2008 8:31:00 PM  From Authorid: 14909    We hope you all get the help you need. You guys did great on the interview.  
Date: 11/13/2008 9:02:00 PM  From Authorid: 53909    Awww lol  
Date: 11/13/2008 9:29:00 PM  From Authorid: 7830    awwww its so great seeing you guys and seeing the syndrome get recognition!!! I dunno why but seeing lil nathan on there brought me to tears!! He's such a doll.  
Date: 11/13/2008 9:39:00 PM  From Authorid: 64637    Your family is in my prayers PNK! Your sweet baby is precious! HUGS  
Date: 11/13/2008 10:11:00 PM  From Authorid: 16671    That baby boy is just a doll baby. I'm so sorry he has to go through all of this and I will keep him in My prayers that In the name of Jesus that God will guide the hands of the Doctors that are taking care of nathan and that what ever the doctors do to help that the Lord will cause a speedy recovery for baby nathan. I pray in the name Of Jesus to give this mommy and daddy the strength and finances that is needed during this time of great need. Amen  
Date: 11/13/2008 10:13:00 PM  From Authorid: 16671    Just one thing, about the formula, they changed my daughter kate to differnt ones as nothing was working for her not even the soy, finally they found out it wasn't the formula but that she was allergic to iron.  
Date: 11/13/2008 11:35:00 PM  ( SD-Admin )   Best of Luck, a child is such a gift. My prayers
Date: 11/14/2008 1:50:00 AM  From Authorid: 30747    Awwwww I'm so sorry you all are going through this and I wish you all the best,especially that darling little boy. You did a good interview too.  
Date: 11/14/2008 7:17:00 AM  From Authorid: 16845    Oh wow, that's so great Here's hoping it brings answers and donations for the little guy.  
Date: 11/14/2008 10:56:00 AM  From Authorid: 63241    I'm praying in agreement with the others for little Nathan and your family. May you get all the help you need.  
Date: 11/14/2008 4:43:00 PM  From Authorid: 4144    he is such a little doll!  
Date: 11/15/2008 9:21:00 AM  From Authorid: 17014    Aw! He such a cutie patootie!!  
Date: 11/15/2008 12:09:00 PM  From Authorid: 3835    I am so hapy that the other videos are also in this so others can view them too!!!! Great Interview, I am proud of all of you (-:

http://www.youtube.com/watch?v=UGGBze5YtY8

http://www.youtube.com/watch?v=ZhSKrCqqLBI

http://www.youtube.com/watch?v=ye_tzFAa188

  
Date: 11/17/2008 12:44:00 PM  From Authorid: 28848    wow incredible. you did such a great job.  
Date: 11/19/2008 7:35:00 PM  From Authorid: 14314    You have a beautiful baby *hugs* God Bless  

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