Well, Nathan update. It's not good.

The UW childrens hospital trip was a bust and a half. Dr. Noonan, the specailist was a wrung out washed up donkey over the naked moon with chicken feathers stuck up his specialistic bum. Yeah, he's sure special all right.

Nathan will not ever see him again vice versa and I will call personally to tell them that not only was the solid cast he did CUT OFF afterward here in town, but his casting job severely cut off blood supply to Nathans hand and might have caused permanent damage to his fingers. We'll find out tomorrow when we take him back in for a check.

They clam shelled his cast and when that didn't work, they literally cut off the whole top of his cast, so his cast is literally not on, but it is now ace bandaged together.

So we had the UW trip, an ER trip another ER trip and so many calls over and over to both hospitals. We were almost taken by ambulance from here to Madison UW ER again.

SO yeah I'm kinda smearing Dr. Noonan here, but you know what? He's supposed to be some great wonder of the world and all he was well, isn't G rated, hence the title I gave him above.

Where do we go from here? Easy. Shriners. Yes, the guys in parades with funny hats. SHRINERS!!!!!!

So now we will travel the over 100 miles to see people who TRULY care and listen and love and help.

We thought that's what we were getting, but no, we were wrong. A pediatric Orthopedic Surgeon tha tmight have caused my baby permanent damage. WAY TO GO DR. NOONAN!!!! expect a complaint filed against you in the morning :)

ALSO WHY NATHANS ARM WAS BROKEN...........

It was discovered by the last ER doc who cut Nathans cast off that he had severe shoulder displacia when he was born. It was either break his arm getting him out NOW or he would have died. Literally. SO thank you to my OB for breaking his arm rather than letting him die, but really, you didn't know you broke his arm?

To get a few things off my mind I e mailed someone. THis is what I wrote to them.....

Just an update. We went to UW Madison to have Nathan's arm looked at by Dr. Noonan who casted it up too straight, cut off circulation to his fingers and hand for 9 hours until we went to the ER here in Janesville last night twice to have his cast first clam shelled, then the top cut wide open. So in all 3 visits and worse results. The ER here did more for little Nathan who today is 19 days old than Dr. Noonan. Dr. Noonan did not listen to us at all, and I took 4 of the 6 cases in the world to see him. Not only was he not interested in them, but he was not interested with proper care of Nathan's fused arms. He casted the bone as straight as he could, which is not the way his arms are. They are bent at a 90 degree angle. It's unreal. I never thought in my life it would be this hard to get care for a baby, let alone a baby that is so rare. Seems Daddy and I just can't trust anyone! SO now this morning my focus is getting my 5 yr old off to school then in one hour calling Shriners Hospital in Chicago. Shriners is gonna be our best bet ever. They operated on 2 of the 6 of my family with this birth defect. Least to say they know what do do, as if anyone but them could really know what to do......I don't even know why I'm writing you this to be exact. Maybe a little bit of peace of mind knowing someone out there read this and knows what hell it is for me right now other than family. I exhausted all of us. Up for over 24 hours and now hopefully a trip to Chicago 100 miles away today. And hopefully all before my son gets off of school at 3 pm. People tell me to take a few minutes for myself a day. I can't. I have a 19 day old trauma patient sitting in his bouncy seat in the living room in God knows what kind of pain waiting to be fixed. Is this how we treat our babies? Is this how we treat our babies who need the best care we as parents can give them? If so God help me, I want none of it. I'll learn to do all this myself.

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