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My Daughter Has Autism....

  Author:  26557  Category:(Discussion) Created:(4/11/2007 12:05:00 AM)
This post has been Viewed (1122 times)

Hello everyone my name is Angie, for those of you who don't me. Most of you know me from chat, or maybe even from one of your posts. But what you didn't know is that my daughter has Autism. I didn't want to say anything, I was never going to, but something triggered me tonight, and it hurt...

It was almost a month ago today that I got the news, I was numb. All I could think was, Why my daughter? Why my sweet precious baby girl? All I could do was ask why, and how, and what causes it?

There weren't enough answers to my questions, and it broke my heart, and still it breaks my heart. Everyday I wake up and I tell myself that this is just a really bad dream, and that I will just wake up and everything will be okay, or that she will just come out of it, or maybe even that they misdiagnosed her....

They tell me that there is no cure for Autism, that it gets worse with age, that she needs help right now. There are limited programs to limited states (2 to be exact.) That I've been told...California, and Wisconsin. They also say that speech and behavioral treatment is what is reccommended, and that Autism only keeps growing, and gets worse with age. Thus what I know so far....

I have piles and piles of papers, numbers to call, groups to join, politicians to write to...most of them still sit. I can't bring myself to do all of it yet, so little by little I start. I don't know what to do first, I pick up a paper and I start to read...I get so far and I break down...I'm not strong enough yet.

I can't bring myself to talk to anyone on the phone, because they all ask questions, they all want to know about it...and I'm just not strong enough, so I don't call them back, because I'm not strong enough.

I've just learned that this is Autism month, So there has been a lot of media attention lately, Shows like Ophra, and Larry king, and The View, I just can't watch them, because again I'm just not strong enough yet.

I've had appointment after appointment after appointment for many different things, I've been taking things one day at a time... The emotions I feel day to day: Hurt,pain,anger...I couldn't name them all.

But the most important emotions that I feel are Love and joy...because at least I can hold my precious baby girl in my arms everyday, and that means more to me than anything else in the world. She doesn't have cancer, and she has all five fingers and toes, I am blessed to have her, wonderfully blessed. Their are people who want children so badly that cannot have children at all. For this reason I have to find joy even in finding out that my daughter has Autism.

I want to thank you all so much, because in dealing with this, I have been coming here, and reading your wonderful posts , you have all brought so much laughter and joy to me, you have all brought smiles to my heart, you have all been helping me through a very rough time...

Everyone needs someone to lean on, and this time it's me. So I thank you all...

I will write more about this at a later time...



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Replies:      
Date: 4/11/2007 12:08:00 AM  From Authorid: 45630    I wish you all the help and support you can get. If you ever need any advice just give me a yell. If I can't help I will steer you in the right direction. Read that book I told you about and it will teach you alot.  
Date: 4/11/2007 12:14:00 AM  From Authorid: 42945    I hope you can get help sweetie, all the help you need....*hugs*  
Date: 4/11/2007 12:15:00 AM  ( From Author ) From Authorid: 26557    Thank you...  
Date: 4/11/2007 12:38:00 AM  From Authorid: 21203    Take it one day at a time - Sometimes, a minute at a time. Do it for HER...Your a Great Mom!  
Date: 4/11/2007 12:42:00 AM  From Authorid: 63575    I agree with Illuminator - there is help out there and there is a lot of information and you are not alone. *HUGS*  
Date: 4/11/2007 3:16:00 AM  From Authorid: 14780    God only gives special moms and dads special little babies...ya know why? Cause it is known that only the rarest of mommies CAN handle what has been chosen. You do have strength and you have it in many ways and forms....*hugs*  
Date: 4/11/2007 3:40:00 AM  From Authorid: 10245    it's a lot to chew on, isn't it? The information is overwhelming... and little of it seems to offer much hope. But it's there. It really is. I remember it taking me almost a year before I told much of anyone outside the family. I couldn't handle all the questions that I didn't have answers to... It will be okay, because in the end everything is and if it's not, then it's not the end ;o) I wish your family strength and endurance for the journey ahead. Don't forget to enjoy the ride... they have a lot to teach us ;o)  
Date: 4/11/2007 4:52:00 AM  From Authorid: 21435    ooperstar. You're such a sweet lady and we all love you. With time, you will only grow stronger and more informed. You are absolutely correct about having your baby to hold and to love every day. Stay strong and Write on......  
Date: 4/11/2007 4:58:00 AM  From Authorid: 12862    I agree with Katsho. I myself was given 2 handicapped children. Not 1 but 2! They have a rare form of Cerebral Palsy. It's hereditary and runs in my family. It skips generations. The Cerebellum isn't fully developed. So they have no contol of their muscles. They have strong muscles just can't control them. The CP that is a birth defect is no muscle tone. I was given 2 special children because God knew I could handle both. It was very, very hard but I got through it. ALONE! Their father and adoptive father didn't help me. They were to busy getting drunk and high. Hang in there. Hugs,  
Date: 4/11/2007 5:16:00 AM  From Authorid: 62849    Is it possible that your daughter has a mild form? Some autistic people lead relatively normal lives.  
Date: 4/11/2007 5:23:00 AM  From Authorid: 45630    beags its probably very hard to tell at 2. when she starts interacting with other kids at kindy and day care it will be seen how severe it is!  
Date: 4/11/2007 5:35:00 AM  From Authorid: 13428    You and your daughter are in my prayers hon. It seems sometimes life just throws us a curve ball but you are so right about being blessed just to be able to hold her. I lost a little one and would love to have her back no matter the cost. You will get through this and if there is anything I can do to help please let me know.  
Date: 4/11/2007 6:02:00 AM  From Authorid: 49739    Iknow exactly what your going through and I've been dealing with it for years. About 4 or 5 years ago, my son (who's 7 going on 8) was diagnosed with Autism Spectrum Disorder. Autism Spectrum Disorder is similar to Autism, and has the same characteristics as ADHD. With my son, he gets very angry and violent. He's been on medicine to help control his anger for about 9 months and it has helped. We still have our moments, but it gets better every day. One thing I can say, is that you want to educate yourself on this. You need all the help and support. Don't be afraid to ask. I have a caseworker (set up through his school) come over to my house every week and if Kordell has a good week, then they go do fun things together. Like last week they went bowling and this week, they're riding go-karts. Also don't be alarmed if your daughter gets fixed on something. With my son, he needed an outlet for everything that was going on with him. He got fixed on Nascar. He revolved his days around nascar. This was his way of calming himself down. Just hang in there and everything will turn out fine.  
Date: 4/11/2007 6:26:00 AM  From Authorid: 64414    Ooperstar, my heart goes out to you, sweetie. I can not imagine the pain and confusion you are dealing with right now. Just remember this, it is one of my favorite quotes (I don't know who said it) "Facts are cheap, information is plentiful - knowledge is precious." I try to keep this in mind no matter what I do. You are doing exactly what you need right now...learning. Learn what you can about autism, then apply it to what you already know (and will learn) about your daughter. You know her best. I will pray for you and your family. The Lord will give you the strength you need to carry your family safely to the other side of this.  
Date: 4/11/2007 7:01:00 AM  From Authorid: 61966    I can't imagine how hard that would be, Angie. But your such a special person, whoever may be in charge just knew you could do it. I wish you all the best with your daughter. *hugs*  
Date: 4/11/2007 7:40:00 AM  From Authorid: 40350    *huggles* I think taking it one day at a time is a good choice, it can be a lot to take in. We are here for you to lean on sweetie, *bear hugs*  
Date: 4/11/2007 8:18:00 AM  From Authorid: 1799    Katsho, I wish that were actually true. Unfortunately, not all kids get that blessing. You, though, Ooperstar: you are one of those rare moms that Katsho is talking about. You have the strength, and we'll all be here to help you keep that strength up.  
Date: 4/11/2007 8:58:00 AM  From Authorid: 40145    Well, to be honest with you, with my hearing impairment, I don't know what to tell you but my honest advice for you is to stop feeling sorry and guilty and start to accept the fact she's austism, and start doing whatever you can to help her and be there for her. Good luck!  
Date: 4/11/2007 9:41:00 AM  ( From Author ) From Authorid: 26557    Thank You all so much for your kind words, It really means a lot to me right now.
I really appreciate all of the help I can get with information right now. I've really just recently started to take more and more action to research this.
  
Date: 4/11/2007 9:44:00 AM  ( From Author ) From Authorid: 26557    My daughter lines things up, and they have to be perfect. She really doesn't talk, she was doing considerably well about a year ago, and then she started to regress. She babbles a lot. On Easter God gave me something wonderful...my daughter said Mommy,Mommy,Mommy over and over something I haven't heard yet, I'd heard Mama here and there. But this overjoyed me.  
Date: 4/11/2007 12:21:00 PM  From Authorid: 4887    My 8 year old has autism. She is so smart and I am very proud to be her mother. I learn new things everyday from her. And she can aalways bring a smile to my face when I am upset, she just looks at me and smiles, touches my face and says "I love you mommy" That always makes my day <3  
Date: 4/11/2007 7:28:00 PM  From Authorid: 58308    You and your daughter are in my thoughts and prayers. Much Strength and Wisdom, Laura  
Date: 4/12/2007 6:49:00 PM  From Authorid: 21203    Have you learned sign language together? Its remarkable the communication that can be had with signing. Even "learning" cards - We work with these at school - they could range from an apple to washing hands to get coat on to make your bed. We have them to communicate with the students always giving them a choice (ie: juice or water - pretzel or yogurt) - we have snack time for school. If you'd like I can get some examples and email them to you? We put velcro on the back and have a strip = so the strip has a person first block reads "I" then the second reads "want" then the child puts (what the want) and velcro's it on to the strip. We make them repeat "I want - apple" - I have actually seen these strips for the parents when they take the kids to McDonalds. We prepare a book for when they go out - so they are always prepared. If you cannot tell - I love the students I work with and am passionate about it. There are many programs out there for your little one...keep up your research. Message me your email address if you want that info I listed.  
Date: 4/12/2007 7:00:00 PM  From Authorid: 15070    Angie, let me please say I can empathize with such a diagnosis for your daughter. The good news is she has a Mother who loves her very, very much, and you are being informed on her condition. The other thing, not to give false hope, but Autism does not mean she cannot have a full, rich life. For example: I know one Autistic Man who drives a car, holds down a job, and functions very well in society. It is a matter of degree. (I wish I knew what to say.) Stay strong, and know that there are support systems, and people who can help. She is still your Beloved Daughter. And better you found out now, so you can work with her....  
Date: 4/12/2007 8:04:00 PM  ( From Author ) From Authorid: 26557    Thank You all so very much! I just cannot beleive this but I've just learned that Bill Gates has a form of Autism!!! Bill Gates! The Billionaire!!!  
Date: 4/13/2007 9:45:00 PM  From Authorid: 21203    ^^ This is the product I wrote about ^^ its great.  
Date: 4/13/2007 9:45:00 PM  From Authorid: 21203    http://www.pyramidproducts.com/catalog/index.php?cPath=23&osCsid=2c8169f58a9dc9d318401249a82ace95  
Date: 1/11/2013 3:38:00 AM  From Authorid: 28071    Oh, no....hope she is getting everyday and making progress. Hope you're doing well, ooper. Your old USM pal, David/Fearfactor  

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