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Any one got a pep talk in them? I could use it.... mercury

  Author:  10245  Category:(General Advice) Created:(5/2/2005 7:58:00 PM)
This post has been Viewed (1212 times)

I’m really nervous.

Some of you know that my (almost~ next week!) 7 year old son is mildly autistic.

The school district has been doing a complete evaluation of him throughout this school year.... psychological evaluations, IQ, speech development... the works.

The results are in. Tomorrow’s our IEP meeting. I have mixed emotions about how I want those results to read.

I received a copy of the report from his speech pathologist today. She has recommended that he continue speech therapy. That’s good. He’s qualified until he’s 9, I think. I’ll ask more questions tomorrow.

The rest of the evaluations are what have me all worked up.

I want him to get the help he needs, but I’m so terrified of what label they’ll attach to him.

AUTISTIC: He qualifies for services, gets the help he needs and hopefully has the opportunity at a normal life as a quirky little guy.... but be called "autistic" and be stuck with all the associations that come with that label.

ASPERGER’S : I don’t think it’s an option.... too much speech delay to fit the diagnosis requirements.

Pervasive Development Disorder (PDD)/PDD~NOS (not otherwise specified): He’ll get speech therapy, won’t qualify for occupational therapy, or any other services through the district, past his 8th birthday, which means any additional therapies will have to be paid out of pocket. Therapists run in the neighborhood of $70/hour. I can’t afford that and without that “autistic” label, our insurance won’t pay for it. I worry that he won’t ever learn how to connect with people or stop overstuffing his mouth.... that he’ll be dependant on me, or someone else, for the rest of his life and feel he doesn't belong anywhere.

These aren’t facts... just the way I’m blowing it up in my mind.... and this is waaaayyyy simplified from the activity going on inside my little melon.

I’m also worried that he’s made “too much” progress and that he won’t qualify now, but maybe would have if I’d have pushed harder for them to do this earlier.... or gotten my own medical evaluation instead of being satisfied with the progress he did make.

I know things will work out exactly as they should... Right?

So why am I beating myself up?

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Replies:      
Date: 5/2/2005 8:02:00 PM  From Authorid: 3688    Because your mom, and mommy's always beat themselves up over anything dealing with their children. BUT You've done a wonderful job raising your son and you're a great mommy!  
Date: 5/2/2005 8:06:00 PM  From Authorid: 63077    I say this very often, and, as I always do, mean it in the nicest way. Just suck it up. If the district determines that he won't need extra help and he does, you can appeal their decision, and if he doesn't, then he doesn't. If they decide that he is, by their standards, autistic, then who cares about the label? It doesn't make him any less your son, or any less a person. The label could even prove useful--anybody who's gonna judge him based on it isn't worth his time, and that's a great way to screen out less savory people, y'know? Whatever happens happens, and it'll be for the best. I certainly hope I've helped. :-D USMC0705  
Date: 5/2/2005 8:06:00 PM  From Authorid: 53900    Just remember that even if he doesnt qualify for those services the school will work with you to find a way to fund what he needs. That is what they do with my son anyhow and try not to worry until you really need to just tell yourself things will work out the way they should  
Date: 5/2/2005 8:07:00 PM  ( From Author ) From Authorid: 10245    Thank you Dreamer. How's that little one of yours? He's so beautiful (I haven't had the opportunity/occation to use my "awww" line on any of these USM babies! They're all too perfect and cute LOL)  
Date: 5/2/2005 8:07:00 PM  From Authorid: 12341    Everything WILL  
Date: 5/2/2005 8:08:00 PM  From Authorid: 12341    yikes, everything will work out fine!  
Date: 5/2/2005 8:09:00 PM  ( From Author ) From Authorid: 10245    I always forget about the grants and stuff they have... okay. Better.  
Date: 5/2/2005 8:09:00 PM  From Authorid: 11341    Because hes your son! I just pray things are going better for your son than mine. I will keep you both in my thoughts. *hugs*  
Date: 5/2/2005 8:10:00 PM  From Authorid: 3688    He's sleeping right now I'm tickled he's gained some weight, (he was 5lbs 14 oz at birth and he's 6lbs 2oz now) hehe he's just too adorable for words   
Date: 5/2/2005 8:11:00 PM  ( From Author ) From Authorid: 10245    Thanks USMC. Yep... I know what you mean. I can suck it up... I can.   
Date: 5/2/2005 8:12:00 PM  ( From Author ) From Authorid: 10245    Thank you Brenda... I just needed some reminders   
Date: 5/2/2005 8:13:00 PM  ( From Author ) From Authorid: 10245    Not good, DMK? I'll pray for you, too. ((hugs))  
Date: 5/2/2005 8:13:00 PM  From Authorid: 15394    You hit the nail on the head with "things will work out exactly as they should" But as parents we are afraid that we will fail somehow (I'm sooooo familiar with that fear) But honestly the end goal is what is best for your child to help them have the most positive, healthy happy and productive life they can right?? So whatever they offer by means of support is just that, support... you will be an excellent advocate for your child because you care enough to go through all this to find out what ways you can assist him Over and over it hits me that what will be will be and it is what I do with it that matters   
Date: 5/2/2005 8:15:00 PM  ( From Author ) From Authorid: 10245    Wow! That's great, Dreamer!   
Date: 5/2/2005 8:16:00 PM  From Authorid: 5229    I can tell you that not every parent would do so much for their child. I have seen children that you can tell are autistic in schools that i went to, that never had any help whatsoever. Give yourself a huge pat on the back..your son will appreciate it always and things always work out as they should, have faith, don't beat yourself up because what you've did is awesome.  
Date: 5/2/2005 8:17:00 PM  ( From Author ) From Authorid: 10245    Thank you, Jungabel. I feel like I've been slacking this year, too... that doesn't help.But your absolutely right. During a meeting last week, one of the questions they asked me was "What would you like your child to be when he grows up?" My answer: Complete.  
Date: 5/2/2005 8:18:00 PM  ( From Author ) From Authorid: 10245    Thank you, GOAR. That means a lot.  
Date: 5/2/2005 8:22:00 PM  From Authorid: 63077    Jungabel has an unfair advantage, she can keep tabs on her daughter through USM. :-P USMC0705  
Date: 5/2/2005 8:48:00 PM  From Authorid: 42945    aww sweetie, I can feel your anxiety...I dont know what I can say to make you feel more confident about the whole situation, but I do wish you and your son all the best that life can offer you hun....hugs  
Date: 5/2/2005 9:03:00 PM  ( From Author ) From Authorid: 10245    Thank you, Zema. I couldn't sleep, so now I'll be a zombie in the morning. Great... an anxious zombie.   
Date: 5/2/2005 9:16:00 PM  From Authorid: 20956    your anxious because you're a mum and you care so much. good luck, i am sure everything will work out how it should   
Date: 5/2/2005 9:34:00 PM  From Authorid: 53836    you beat yourself up because that's what mom's do best. You love your son and want the best for him It'll work out, I'm sure!  
Date: 5/2/2005 10:38:00 PM  From Authorid: 3648    Hun, it will all work out as it should...Beating yourself up isn't the answer, but hey your a mom and that's what moms do best besides love their kids. I know you are doing a excellent job being his mom!  
Date: 5/3/2005 4:42:00 AM  ( From Author ) From Authorid: 10245    Thanx guys. I really appreciate the support I finally managed a few hours sleep. I'll be back with updates later... if I can face it.  
Date: 5/3/2005 4:43:00 AM  From Authorid: 56489    I don't know what to say, except mothers worry, & always want the best. I hope they label him for the best for both of you, so he can get the education he needs. hugs...  
Date: 5/3/2005 5:27:00 AM  From Authorid: 18527    Good luck, everything will turn out FINE.  
Date: 5/3/2005 7:06:00 AM  From Authorid: 4548    there's NOTHING worse than the unknown, especially as it pertains to your child's future. not having control over that is the worst feeling ever. dealing with insurance is a nightmare, too. i totally understand and empathize. merc, you and your family are in my prayers.  
Date: 5/3/2005 7:38:00 AM  From Authorid: 2030    He's a good kid with a few problems. He also has great parents who care and will break their back to make sure he gets whatever he needs. I'd say things will work out fine and he's very fortunate.  
Date: 5/3/2005 8:11:00 AM  ( From Author ) From Authorid: 10245    okay... I'm back. And things are FABULOUS! He's still qualified under ECDD (early childhood developmental delay) for the same assistance that he received this year and in years past: Occupational Therapy 3-4 x's per month, Speech Therapy 3 x's per week, and Resource Room 40-60 minutes daily. He's not autistic...he scores in the very low probability range.... but they agree that I'm not crazy. He does have many of the behaviors, just not the consistantly of them. Autism would produce the behaviors in all circumstances (i.e. his coping skills are too good for that diagnosis). He's also outgrown many of the behaviors that used to be major problems. His IQ is only 80, but that can be because he doesn't quite get all the concepts required yet... we'll have to wait and see. Over all, I walked out of there feeling secure that everyone is on the same side and it's Collin's. Thank you everyone for everything. I would have driven myself insane last night ((HUGGS!!)  
Date: 5/3/2005 9:47:00 AM  From Authorid: 24924    Many years ago, I knew two families that each has an autistic child. One of them I was quite worried about myself. Back then I didn't know jack about nothing when it came to this sort of thing. I ask one mother if she would fly her son out here to stay with me for a couple weeks. Oh boy....I'll never forget that two weeks. Today, both those guys are very sucessful, beautiful and talented young men. One (the one who visited me as a teenager)is an agent for some big name people in the entertainment field, and everyone is so proud of him. With such caring parents as you, it couldn't help but turn out very well for your son.  
Date: 5/3/2005 10:07:00 AM  ( From Author ) From Authorid: 10245    That's awesome, Thinker. I'm hearing more and more stories like that and it gives me such hope. Thanks for sharing it with me   

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