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Thank You For Your Prayers.........Linda B.

  Author:  17417  Category:(USM Events) Created:(10/6/2004 11:31:00 PM)
This post has been Viewed (1525 times)



first of all let me apologize for all lower case, I am unable to use the extremities on my right side so I have to type with my left hand only..

I would like to Thank Everyone for their Prayers and Well Wishes they are Greatly Appreciated..

As some of you may know I have been gone for nearly a month..i saw a couple of posts go up including the one from M’Lady asking for Prayer for me..i asked her not to reveal what was going on until a had a conclusive diagnosis..she respected my wishes and I am here today to tell all of you who have been so kind what has happened in that month..

To begin I went to kent county hospital in February because my speech had begun to slur and I had noticed a slight weakness on my right side..they admitted me, ran a few tests and after 6 days released me claiming they could find nothing wrong..

On september 8th I went to rhode island hospital because my speech had significantly deteriorated and I could no longer be understood. my right side had now become Weakened to a point where I couldn’t walk or use my right arm and hand..i also had stopped eating solid food because I would choke and inevitably lost 54 lbs..while in rhode island hospital they ran a battery of tests for three days and found the problem.. I was diagnosed with ALS Amyotrophic Lateral Sclerosis more commonly known as Lou Gehrig's Disease..It is a Terminal Illness with a life expectency of 1 - 3 years..

I was put on 11 medications..the Good News is there is a new drug recently approved by the FDA Called RILUZOLE the Bad News is I am supposed to take 50 mgs twice a day and the cheapest we have found it for is $300.00 for a months supply..it is ironic that when a drug is in it’s testing stage it’s free but once it’s found to work,the people with ALS can’t afford it..

after leaving rhode island hospital I was sent to St. Joseph’s Rehab Hospital where I was Blessed to meet Lauren Speech/Therapist,Sue/Occupational Therapist and Diane and Erin/Physical Therapists…they are Four of the most loving,caring and ,compassionate woman I have met in some time..the doctors and nurses at this facility are amazing and I found myself in tears when I was discharged yesterday…

after four days there the doctors were concerned when I could no longer drink liquids so they put in a g-peg..it’s a tube that’s surgically placed in your stomach and allows you to take in liquid nourishment as well as medications..

I am now home,in a wheel chair which allows me the freedom I sooooo missed..i will also be getting a light writer which will enable me to speak again..whatever I type it will read aloud..technology is amazing!!!

I ask only that you keep my family in prayer they are not taking the diagnosis very well..i on the other hand cannot wait until I get my light writer and I can speak to USMers on the phone again using this device..

Thank You again for your Prayers and Well Wishes..May GOD continue to Bless you All as you have Bless me !!!!!!!!

Much,Much Love,I Remain Forever And Always In Spirit, Linda B.

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Halloween is Right around the corner.. .







 
Replies:      
Date: 10/5/2004 2:38:00 PM  From Authorid: 35160    auntie linda hun. im so glad your home. i am very sorry to hear that your having to go through all this. i will cont. to keep you in my thoughts sweety. huge,huge, huggs , shay  
Date: 10/5/2004 2:45:00 PM  From Authorid: 11251    hugs, love ,and prayers...  
Date: 10/5/2004 2:53:00 PM  From Authorid: 23075    I'm glad you are back..there hasn't been a day go by that I didn't think of you.....I thought of you every day....  
Date: 10/5/2004 3:09:00 PM  From Authorid: 58078    Auntie Linda...its so great to see you back again. I wish you all the best. You will forever be in my thoughts and prayers. *HUGS*  
Date: 10/5/2004 3:13:00 PM  From Authorid: 14780    My thoughts and prayers have been with you for a long time and will continue...You know the saying you dont know what you have until its gone (or something like that..LOL.)..While you have been gone you've been truly missed...I love you as we all do here at USM. Im glad to see you back home! ((hugzzz))  
Date: 10/5/2004 3:14:00 PM  From Authorid: 61977    You will be in mt thoughts.....I am so glad that you are now at home...  
Date: 10/5/2004 3:14:00 PM  From Authorid: 61977    oops MY LOL (o:  
Date: 10/5/2004 3:15:00 PM  From Authorid: 25390    Linda, I am so happy to see you back. You have been in my prayers. I hope that you find a way to afford those medications, it is ridiculous how much meds can cost. I am so glad you are getting your freedom back. You will continue to be in my prayers as well. *big huge hugs*  
Date: 10/5/2004 3:18:00 PM  From Authorid: 27705    Linda!! Missed you so much...its great you are back. I wish you all the best and you of course are in my prayers...we love you here linda you need anything we are here for you....*hugs* peace and love Regina  
Date: 10/5/2004 4:23:00 PM  From Authorid: 5818    Gramma Linda I am so happy to hear your home and I am so sorry about your ilness but we are here for you and I am here for you Huge hugs gramma Huge hugs to you  
Date: 10/5/2004 4:35:00 PM  From Authorid: 50499    I am so happy to see you back, Linda. It just hasn't been the same without you. All my love and prayers to you and yours.  
Date: 10/5/2004 6:28:00 PM  ( Admin-DNL )   Linda I have been gone from USM for awhile and haven't been keeping up well with posts so I didn't know what happened to you. I am sorry you are going through this and I hope it gets better, *hugs*
Date: 10/5/2004 6:51:00 PM  From Authorid: 27583    welcome back sis , love you , wooden nickel  
Date: 10/5/2004 7:34:00 PM  From Authorid: 998    Yep, that is my sis for sure. You are diagnosed with a challenge, but you are looking for the rainbows in being able to talk with all of us, your friends again !!! That is the strength that we have always seen in you, and the strengths that we take to help us when we are in troubles. You have always inspired, encouraged and enlightened all of us who have grown to know you. It is sooooo good to have you back. Your one in a billion definitely Linda !!! *Hugs*  
Date: 10/5/2004 7:39:00 PM  From Authorid: 12341    Linda, you are indeed the light and inspiration of USM. You are in my thoughts, and I admire your courage so much.  
Date: 10/5/2004 8:06:00 PM  From Authorid: 53961    Sweetie, I am sending LOTS of LOVE, and a TON of {{{HUGS}}} and a PLETHRA of BUTTERFLY KISSES that will knock your socks off! Always remember, that God doesn't give you more than He knows that you can handle. Prayers going up on your's and your family's behalf,  
Date: 10/5/2004 8:11:00 PM  From Authorid: 3642    There is always times in our lifes when learning takes a trun into unfamiliar territory . When it is happening it gives us the chance to see our strengths and weakness ,my wish for you is in this experince is that you will see your strengths Gods speed Linda  
Date: 10/5/2004 8:26:00 PM  From Authorid: 4309    That is indeed one of the worse things you could be diagnosed with (Trust me as someone who has been in ER more times then at work and could eat bread while lying in bed nautia and not being able to drink or eat is the worst) Losing the control of your muscles has nothing to that . Its like you have been struck with polio with permanent stomach flu. My prayers will not go for your family accepting. Mine are for you . Peace2Ü You indeed remain strong in spirit.  
Date: 10/5/2004 8:34:00 PM  From Authorid: 20750    Aww Gramma! I can't wait to talk to you on the phone again! You are in my prayers! Love ya!  
Date: 10/5/2004 8:48:00 PM  From Authorid: 14314    I`m so sorry you are going trough this, you have my prayers!!!!!!! Get Well Soon And GOD BLESS YOU ALWAYS!!!!!!!  
Date: 10/5/2004 9:40:00 PM  From Authorid: 42945    (((((((((((((hugzzzzzzzzzzzz)))))))))))))and I love you Sis....  
Date: 10/5/2004 10:11:00 PM  From Authorid: 3835    Linda Mom - I am really happy that technology is there in times like this (-: It is really good to see you here and posting. I have had you in my thoughts and chants for a long time for healing and powerful restoring to spirit!! I am still thinking of you *hugs* (-:  
Date: 10/5/2004 11:38:00 PM  From Authorid: 3263    *hugs* it's so good to see you back. I knew you were going through some things but I had no idea...I know if anyone can make it through this, it's you   
Date: 10/5/2004 11:38:00 PM  From Authorid: 20956    big *hugs* linda, great to see you back   
Date: 10/6/2004 12:08:00 AM  From Authorid: 16061    Welcome back. Now make sure you take lots of rest.  
Date: 10/6/2004 12:47:00 AM  From Authorid: 19871    *hugs lindy tightly  
Date: 10/6/2004 12:53:00 AM  From Authorid: 62136    Linda, I really dont know what to say. My heart sank reading this, as I am somewhat familiar with this disease-through a very good friend of mine. Her husband has this but he isnt as advanced as you are. I pray that this new med works out for you. I am so sorry Have you checked in to the online support groups? (((hugs)))  
Date: 10/6/2004 1:29:00 AM  From Authorid: 21266    oh linda you have my prayers.. *hugs*  
Date: 10/6/2004 2:00:00 AM  From Authorid: 33925    Welcome home Mamma. I am so proud of you..Just wanted you to know that. You have got to be one of the strongest ladies I know. You are an inspriation to others. My thoughts and prayers are with you and your family during this adjustment time. God bless you.  
Date: 10/6/2004 3:59:00 AM  From Authorid: 10798    Oh, Linda I'm so, so sorry this has happened to you...but you and I both know we're serving a big, big God who can do anything including healing. We sure missed you around here and we love you very much and are so glad you are back!!!  
Date: 10/6/2004 5:59:00 AM  From Authorid: 25828    i love you momma linda.  
Date: 10/6/2004 6:06:00 AM  From Authorid: 18527    Linda, as you may know, my grandfather and father had ALS, and I carry the gene, if you have any questions (and I am aware of many homeopathic treatments that were quite effective) then please message me or call me. God bless you. Keth  
Date: 10/6/2004 7:09:00 AM  From Authorid: 20296    I do not know what to say mom. I have been so neglectful where my USM family is concerned. I knew you were going through some medical stuff and thought it sounded like a stroke. I am sorry to hear what it is, but with medical advancements, hopefully there will be more break throughs. I am glad they have meds, but...yes, meds are so expensive. I really hope the richest country in the world can learn to help it's own people soon. love you. *huGz* connie  
Date: 10/6/2004 10:50:00 AM  From Authorid: 62889    *hugs* im glad your back home, its da best place to be! il keep you and your family in my thought! Love Lucy (your new grandchild ) hehe!!! xxx
Date: 10/6/2004 12:51:00 PM  From Authorid: 50678    I'm so sorry for your problems, but I'm glad you are home and able to visit us!! I missed you, I can tell you are a strong woman and won't give up that easily!! You will always be in my prayer Linda!! *BIG HUGS* I'm so glad your back   
Date: 10/6/2004 1:18:00 PM  From Authorid: 62476    Glad your back and I hope you get better  
Date: 10/6/2004 2:37:00 PM  From Authorid: 30575    Welcome home! I will still be wishing you well, and I love you *horseyhugs*  
Date: 10/6/2004 4:13:00 PM  From Authorid: 10798    Linda, we all love you very, very much.  
Date: 10/6/2004 5:40:00 PM  From Authorid: 11341    As always you are in my heart! *HUGE hugs*  
Date: 10/6/2004 5:51:00 PM  From Authorid: 46035    I am so happy that you are feeling better. We did miss you here.Love & Huggs . Deborah AKA Chinablue  
Date: 10/6/2004 6:20:00 PM  From Authorid: 19220    OMGoodness Mom. I'm so happy to hear that you're at home and the doctors were able to find out what was wrong. My prayers and thoughts will be with you and your family. ~Blessings and huge hugs~  
Date: 10/6/2004 10:32:00 PM  From Authorid: 49091    Awwwwww Grandma Linda!!!! Im so glad to see your back!! *huggs* You and your family will remain in my prayers.  
Date: 10/7/2004 2:38:00 AM  ( SD-Admin )   My thoughts with you.
Date: 10/7/2004 2:51:00 AM  From Authorid: 58308    It's so nice to see you back!! *smiles and feel better hugs*  
Date: 10/7/2004 12:32:00 PM  From Authorid: 11211    Linda, you are in my thoughts and prayers.....I'm so sorry to hear this....you have been through so much, and the courage you have is incrediable.....I love you......  
Date: 10/8/2004 9:18:00 AM  From Authorid: 4548    linda my thoughts and prayers are with you now and always. God bless  
Date: 10/11/2004 12:39:00 PM  From Authorid: 17275    Oh Ma, I am so glad that the Doc's have figured out what is going on with you. Thank God you are home, let me know when you get your light writer so I can call you! As always you are in my prayers!!! Lots of love to you from me, Cassidy, Jessica and your newest grandson "Logan"!
  
Date: 11/7/2004 6:38:00 PM  From Authorid: 28125    I'm so glad you are home now and doing well considering all you've been through...You will continue to be in my prayers as well as your family...I Love You Heaps...Lots of Hugs...GBU...ICL~*~*~*~*~*~  
Date: 2/1/2005 8:43:00 AM  From Authorid: 56176    oh honey i will pray for you,my son has aml leukemia had a bone marrow transplant he is doing good prayers are the cure,im praying for you.god bless ya  
Date: 12/30/2017 2:01:00 AM  From Authorid: 26203    I love you xoxo
  
Date: 5/22/2024 4:52:00 PM  From Authorid: 21435    Linda was such a sweet lady. God Bless her, please.  

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